Holding Light for Every Heart

Supporting children and families affected by congenital heart defects through awareness, education, resources, and compassionate care.

Welcome to Soluna Heart Foundation

At Soluna Heart Foundation, we believe no family should face a congenital heart defect diagnosis alone. Whether your journey begins before birth, in the NICU, during surgery, or years later, our mission is to provide hope, education, resources, and compassionate support every step of the way.

Oreo's Story

Learn how one little heart inspired a mission

to support children and families affected by

congential heart defects.

Find Support

Find educational materials, support, and helpful

resources for families navigating a CHD.

Make an Impact

Volunteer, partner with us, donate, or help

spread awareness to make a lasting impact.

Why We Exist

Every 15 minutes, a family in the United States receives the news that their baby has a congenital heart defect (CHD).

Each year, approximately 40,000 babies are born with a congenital heart defect, making CHD the most common birth defect in the United States, affecting nearly 1 in every 100 newborns.

For every diagnosis, there is a family whose world changes in an instant.

The excitement of welcoming a new baby is suddenly met with fear, uncertainty, and countless questions. Parents are faced with unfamiliar medical terms, treatment decisions, surgeries, and a future they never imagined.

At Soluna Heart Foundation, we understand that journey because we have lived it.

What began as our family’s story became a mission to ensure that no family walks this journey alone.

Soluna Heart Foundation was created to provide hope where there is fear, resources where there are questions, and community where families often feel isolated. Through education, advocacy, family support, and awareness, we are committed to holding light for every heart.

Because every diagnosis deserves HOPE!

Because every family deserves SUPPORT!

Because every heart MATTERS!

Mission Statement

The Soluna Heart Foundation exists to provide education, advocacy, and compassionate support for children and families affected by congenital heart disease (CHD). Through awareness, community outreach, family-centered resources, and meaningful partnerships, we strive to ensure that no family walks their congenital heart journey alone. Inspired by Orinaya Soluna's journey, we are committed to turning challenges into hope and advocacy into lasting change.

How We Help

Core Values

Compassion – We lead with empathy and kindness.

Integrity – We are transparent and accountable.

Hope – We inspire resilience during life's hardest moments.

Community – We believe families are stronger together.

Advocacy – We use our voices to create lasting change.

JOIN THE MISSION

Every act of kindness helps us bring hope to children and families affected by congenital heart defects.

As Soluna Heart Foundation continues to grow, so will the ways you can get involved. For now, we invite you to become part of our community by following our journey, sharing our mission, and helping us raise awareness for congenital heart defects.